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Thursday, August 21, 2014

Milwaukee....brain surgery

We finally made it to Milwaukee for Aaliyah s surgery to treat her Moyamoya. It's been quite the challenge just to get here and now I'm a bundle of nerves. Miss Aaliyah has been ok  with the idea of it up to this point though I'm not sure she understood all what it entailed other than she would have part of her head shaved and have some head aches when it was over. She was not ok with going to school before her hair grows back but I assured her we would find fun hats to wear.
Now that were here...it ended up scheduling kind of goofed so the surgery ended up the day before school started. I had to go with her by myself. Dan is at home with the other two getting them started at school for a new school year this fall.
The trip here was crazy..interstate all the way should be easy...Not. lots of Orange barrels. Some area closer to Madison and Milwaukee actually come to complete stops in the middle of the interstate. I drove on Sunday thinking traffic would be less but it seemed like lots of people out there doing their Sunday drive....bumper to bumper to be exact lol.
Aaliyah had surgery on Tuesday... it took four hours. It's a long time to wait all by myself but thank you Facebook friends for keeping sending prayers. Thankfully a sweet volunteer took me under her wings when I broke down in tears. Long long day. Finally almost 4:30 before I could see my baby. It went well the doctor said. Tough little girl!!

Took most the evening to get headaches and throwing up under control but by 1am she was good.by 4am woke up watching cartoons.
Wednesday morning took awhile to get headaches under control but finally they seemed to be doing well. By 10 pm was a chatty Kathy.
Today (Thursday ..right?)  She woke up at 5:30 with a bad headache..oral med either didn't control head or caused tummy upset as threw up at 6:30. Head each then got worse. She had moments today of being good but headaches not very good under control. Neuro checks are all good. She did sit on the edge of the bed for a short period with OT but shortly after bad headache started again. IV pain med and call to the Dr. If fluids were turned down but increased again because just not eating or drinking much of anything. Hoping this bump quickly smoothes out. Peanut is resting at the moment.







Monday

3 comments:

  1. Friday...
    Continuing our day in ICU...yesterday ended up really full of headaches and puking. Finally at 10pm the neurosurgeon ordered a scan which thankfully came out ok. They then changed her pain med. She had a nice quiet night. This morning started right away after sitting her up in bed and a instant headache. Tried anxiety med that didn't work so gave morphine it worked and now for the first time.... She's loopy. Oh well the pain is gone for the moment.

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  2. SATURDAY
    For the rough evening and night :(
    Poor baby even had me in tears. More headaches and throwing up.
    Drs reassured me she was ok that Neuro checks came back fine ...even though she couldn't tolerate even a slight elevation of the bed without headache...then the throwing up. This morning after a headache got under control she had a burst of energy....then a therapy dog came to visit and she sat up for 45 min in bed without a headache. Really a better mood. And her stubborn self. She ate peanut butter ,jelly sandwich....added Doritos to it lol but ate and it stars down. Bit of a headache again but planning a walk for the first time since Tuesday when she had her surgery....fingers crossed it goes well!!

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  3. Monday Doing super!
    Doctor Said may be able to discharge tomorrow but stay in town one more day. Aaliyah s ivs were stoped this morning and she's been drinking great. Fluids are crucial. As this is what will help prevent stroke. She is getting around great and didn't even take any pain meds today.

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