Pages

Thursday, August 21, 2014

Milwaukee....brain surgery

We finally made it to Milwaukee for Aaliyah s surgery to treat her Moyamoya. It's been quite the challenge just to get here and now I'm a bundle of nerves. Miss Aaliyah has been ok  with the idea of it up to this point though I'm not sure she understood all what it entailed other than she would have part of her head shaved and have some head aches when it was over. She was not ok with going to school before her hair grows back but I assured her we would find fun hats to wear.
Now that were here...it ended up scheduling kind of goofed so the surgery ended up the day before school started. I had to go with her by myself. Dan is at home with the other two getting them started at school for a new school year this fall.
The trip here was crazy..interstate all the way should be easy...Not. lots of Orange barrels. Some area closer to Madison and Milwaukee actually come to complete stops in the middle of the interstate. I drove on Sunday thinking traffic would be less but it seemed like lots of people out there doing their Sunday drive....bumper to bumper to be exact lol.
Aaliyah had surgery on Tuesday... it took four hours. It's a long time to wait all by myself but thank you Facebook friends for keeping sending prayers. Thankfully a sweet volunteer took me under her wings when I broke down in tears. Long long day. Finally almost 4:30 before I could see my baby. It went well the doctor said. Tough little girl!!

Took most the evening to get headaches and throwing up under control but by 1am she was good.by 4am woke up watching cartoons.
Wednesday morning took awhile to get headaches under control but finally they seemed to be doing well. By 10 pm was a chatty Kathy.
Today (Thursday ..right?)  She woke up at 5:30 with a bad headache..oral med either didn't control head or caused tummy upset as threw up at 6:30. Head each then got worse. She had moments today of being good but headaches not very good under control. Neuro checks are all good. She did sit on the edge of the bed for a short period with OT but shortly after bad headache started again. IV pain med and call to the Dr. If fluids were turned down but increased again because just not eating or drinking much of anything. Hoping this bump quickly smoothes out. Peanut is resting at the moment.







Monday