NeVaeh has been doing awsome lately
She has been working on the Ipad all summer on the Talk Tablet app for communication. Over the summer we went to the Sanford Castle weekly for ST to get used to it. She now is back to school and gets her ST there 4x a week and at the castle every other week.
She ordered her food at Dennys the other day and was able to figure out what she wanted without any cuing. She is able to navigate around it really well! I have it programed pretty complex and was afraid it was too hard for her but she always seems to find where she want to go. The app is great as it can be as simple or complex as one needs it to be.
She was fussing about dinner last night so I gave her the Ipad and told her if she could tell me what she wanted I would make it. She was signing chicken. I said I know you want chicken but tell me with your words. She found it in seconds! then proceeded to go the freezer and get it out :)
This seems to be really opening a new world for her. The ST found a way to lock her app so she cant navigate out of it so that also helps. She has a long way to go but this is so exciting!
https://www.youtube.com/watch?feature=player_embedded&v=m6HcFWGQn48
She did have a rough September seems she just couldn't get over being sick :(
She started the end of August with a sinus infection and couldn't quite get over that even with two courses of antibiotics then ended up with a mysterious rash.
Shortly after that cleared up she again go very sick and throwing up. Ended up with pneumonia and UTI. She again had two different antibiotics :( . This time she again ended up with a mysterious rash. The Doctor thought is was some kind of strepp infection. I though it was the antibiotics. It cleared up using a steroid ointment a few days after her antibiotics were complete. Guess we will find out if she needs the antibiotics again if it was that.
She's feeling pretty good now with still a little cold symptoms but nothing too bad anymore....lets hope it stays that way!
She did have a rough September seems she just couldn't get over being sick :(
She started the end of August with a sinus infection and couldn't quite get over that even with two courses of antibiotics then ended up with a mysterious rash.
Shortly after that cleared up she again go very sick and throwing up. Ended up with pneumonia and UTI. She again had two different antibiotics :( . This time she again ended up with a mysterious rash. The Doctor thought is was some kind of strepp infection. I though it was the antibiotics. It cleared up using a steroid ointment a few days after her antibiotics were complete. Guess we will find out if she needs the antibiotics again if it was that.
She's feeling pretty good now with still a little cold symptoms but nothing too bad anymore....lets hope it stays that way!
I managed to take some pictures of her the other day :)
She is progressing with her communication though she isn't saying much for words right now my 8 year old is doing great with communicating. Her messed up chromosomes just continue to be a challenge for her. Nobody can tell her she Can't do something cause she will just in her own way in her own time.
This is her world of 1p36 deletions syndrome/12 q duplication Syndrome
She's getting so Big! Great accomplishments NaVaeh! I'm glad she's feeling better.....Love her very much
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